About 

I am strictly a patient. I am not a medical professional. This website is NOT a substitute for having an informed discussion with your doctor.  

 

DBS is Not a Cure 

Repeat! DBS is not a cure. Success varies from patient to patient. 

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Everyone's Dystonia is Unique

Like anything in life, treatments for dystonia are all about managing one's expectations. The best advice I was ever given by one of my amazing doctors was, "do not compare yourself to other patients."  Doing so will only skew your perceptions and expectations. 

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